A youtube video of a cute little girl from Kentucky dancing to Bruno Mars Uptown Funk has caught my attention last year. I watched her zumba video countless of times because it makes me happy until I got curious and searched for her other videos. My search led me to Audrey’s facebook page. Who would have thought that this bubbly, energetic 7 year old is afflicted with a rare bone marrow disease?
What is Diamond Blackfan Anemia?
According to Diamond Blackfan Anemia Foundation, Inc. DBA is a rare inherited bone marrow failure syndrome, characterized by a failure of the bone marrow (the center of the bone where blood cells are made) to produce red blood cells. This failure causes DBA patients to become severely anemic.
Treatments available for patients suffering from BDA are blood transfusion and corticosteroid medication. A riskier option is the bone marrow transplant.
Audrey did not let her age nor her anemia get in the way to promote awareness of this disease. With the support of her loving parents Scott and Julie, they are spreading positivity through social media. Audrey’s facebook page has brought together 1,143,092 people praying, cheering, appreciating, supporting and donating funds to research to find cure for DBA.
Audrey is an inspiration to her facebook family. She has been poked by needles countless of time and has undergone blood transfusions but you’ll never see her display weakness or sadness. She’s a true mark of bravery and a source of hope in finding cure.
How can you help?
Audrey’s dad set up a fundraiser at GoFundMe. The money raised by Scott Nethery are all donated to DBA Foundation. If you wish to share your blessings, click https://www.gofundme.com/b366qzdw
DBA foundation also has numerous fundraising events. For a list of upcoming events, visit this link http://dbafoundation.org/fundraising/
Do you know someone with DBA?
There are 25-35 new cases of DBA every year in the US and Canada. In the Philippines, there is no information about the number of people afflicted with Diamond Blackfan Anemia. DBA is congenital and is diagnosed during the first year of life.